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Quality Life Even with Hemophilia

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Zlepšování péče o pacienty s hemofilií A: Kde jsme a kam míříme?

24. 3. 2021 Source: Quality Life Even with Hemophilia

Pohlédneme-li na dosavadní časový snímek léčby hemofilie, je patrné, že k velkým pokrokům došlo především v posledním desetiletí. Ze současného výzkumu je však zřejmé, že v závěsu za nimi už čekají další. Aktualizovaná doporučení Světové hemofilické federace (WFH – World Federation of Hemophilia) dokonce obsahují změněnou definici profylaxe a také další novinky. Nejen na to upozornilo sympozium nazvané „Zlepšování péče při hemofilii A: Kde jsme a kam míříme?“, které bylo součástí odborného programu virtuálního kongresu EAHAD 2021.

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New Treatment Options for Hemophilia Come with Discussions on Important Issues

The organizing committee of this year's virtual congress of the European Association for…
24. 3. 2021 Source: Quality Life Even with Hemophilia
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CASE STUDY: Surgical Procedure in an Adolescent Patient with Severe Hemophilia A on Emicizumab Prophylaxis

This case study is narrated by MUDr. Bohumír Blažek from the Clinic of Pediatric Medicine at LF OU and...
1. 2. 2022 Source: Quality Life Even with Hemophilia

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How Does Emicizumab Work in Obese Adults with Hemophilia A?

What is the annual bleeding rate and minimum concentration of emicizumab in obese adults with…
1. 12. 2021 Source: Quality Life Even with Hemophilia
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Final Analysis of the STASEY Study: How Did Emicizumab Perform in Prophylaxis of Hemophilia A Patients with FVIII Inhibitors?

The July virtual congress of the International Society on Thrombosis and Haemostasis (ISTH)…
29. 11. 2021 Source: Quality Life Even with Hemophilia
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What does the analysis of the CHESS PAEDs study say about the relationship between physical activity and the frequency of bleeding events in children with hemophilia A?

Currently, there is limited published data addressing the relationship between physical…
27. 11. 2021 Source: Quality Life Even with Hemophilia
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Gene Therapy for Hemophilia A: What is the Expression of Factor VIII Using the Adeno-Associated Viral Vector SPK-8011?

The goal of gene therapy for hemophilia A is to safely transfer stable and durable expression…
24. 11. 2021 Source: Quality Life Even with Hemophilia
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Patient with Moderate Hemophilia A and Development of FVIII Inhibitor in Old Age and Atrial Fibrillation − Interactive Case Study

MUDr. Petr Smejkal, Ph.D., from the Department of Clinical Hematology, FN Brno, has prepared a...
22. 9. 2021 Source: Quality Life Even with Hemophilia
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Interactive Case Study of a Patient with Severe Hemophilia A - Experience from Slovenia

Assoc. Prof. Dr. Irena Preložnik Zupan (University Medical Centre Ljubljana) describes an interactive...
24. 3. 2021 Source: Quality Life Even with Hemophilia
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Summary Analysis of HAVEN 1–4 and Patient Case Studies from ÚHKT

MUDr. Věra Geierová from the Institute of Hematology and Blood Transfusion in Prague prepared…
24. 3. 2021 Source: Quality Life Even with Hemophilia
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ASH 2020: Efficacy and Safety of Emicizumab in Long-term Follow-up

At the virtual meeting of the American Society of Hematology (ASH) in December 2020, the…
4. 1. 2021 Source: Quality Life Even with Hemophilia
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ASH 2020: Two Real-World Perspectives on Experiences with Emicizumab Prophylaxis

Data presented at the ASH 2020 congress bring interesting insights regarding the…
4. 1. 2021 Source: Quality Life Even with Hemophilia
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Reflection of Progress in Hemophilia Treatment in Current WFH Recommendations

In June 2020, the new, third guidelines of the World Federation of Hemophilia (WFH) were…
30. 9. 2020 Source: Quality Life Even with Hemophilia

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