Long-term caring for senior family members has negative consequences for informal caregivers
Authors:
Iva Brabcová; Hana Hajduchová; Sylva Bártlová; Věra Stasková; Tomáš Hrdý; Olga Dvořáčková; Ingrid Baloun; Helena Michálková
Authors‘ workplace:
Zdravotně sociální fakulta, Jihočeská univerzita, České Budějovice
Published in:
Geriatrie a Gerontologie 2025, 14, č. 1: 38-43
Category:
Original Article
doi:
https://doi.org/10.61568/geri/50-6457/20250217/139909
Overview
Objectives: The aim of this study was to assess the impact of selected demographic, socioeconomic and health determinants on the level of caregiving burden of informal caregivers.
Theoretical bases: The demographic trends of inhabitant development point out the importance of systemic support of the support of informal family care.
Methods: A cross-sectional study was conducted. The study population consisted of 168 informal caregivers in the South Bohemia Region.
Outcomes: A positive linear correlation was identified between the level of caregiver burden and the age, sleep and physical activity of caregivers. As caregivers’ age increased, their caregiving burden increased. At the same time, changes in sleep quality and physical activity predicted higher levels of caregiver burden. A negative correlation was confirmed between caregiver burden, availability of ADP services, and subjective health ratings. Caregiver burden increased with lower availability of ADP services. Caregiver satisfaction with their health decreased with higher levels of caregiver burden. Caregivers living in a family union reported lower levels of caregiving burden than single, divorced, widowed caregivers.
Social work implications: The results confirmed the associations between caregiving burden and selected characteristics of informal caregivers. There is a need of systemic interventions to reduce the burden of family caregivers.
Keywords:
health – informal caregivers – burden – socioeconomic characteristics
Sources
1. Sallim AB, Sayampanathan AA, Cuttilan A, et al. Prevalence of mental health disorders among caregivers of patients with Alzheimer disease. J Am Med Dir Assoc 2015; 16(1): 1034–1041.
2. Loh AZ, Tan JS, Zhang MW, et al. The global prevalence of anxiety and depressive symptoms among caregivers of stroke survivors. J Am Med Dir Assoc 2017; 18(2): 111–116.
3. Horová J, Bártlová S, Hajduchová H, et al. Podpora neformálního (rodinného) pečovatelství. Sociální práce/Sociálna práca 2021; 21(2): 20–43.
4. Zarit SH, Todd PA, Zarit JM. Subjective burden of husbands and wives as caregivers. A longitudinal study. Gerontologist 1986; 26: 260–266.
5. Topinková E. Péče o staré v rodině. Lze identifikovat rodiny s vysokou mírou pečovatelské zátěže? Prakt Lék 1995; 75(1): 7–8.
6. Rabušic L, Soukup P, Mareš P. Statistická analýza sociálně vědních dat (prostřednictvím SPSS). Brno: Masarykova univerzita; 2019.
7. Chisholm JF. The sandwich generation. J Soc Distress Homeless 1999; 8(3): 177–191.
8. Liu X, King J, Boak B, et al. Effectiveness of a behavioral lifestyle intervention on weight management and mobility improvement in older informal caregivers: a secondary data analysis. BMC Geriatr 2022; 626(22): 626–637.
9. Dudová R. Doing gender and age: the case of informal elderly care in the Czech Republic. Int J Ageing Later Life 2018; 12(1): 41–73.
10. Serrano-Aguilar PG, Lopez-Bastida J, Yanes-Lopez V. Impact on health-related quality of life and perceived burden of informal caregivers of individuals with Alzheimer’s disease. Neuroepidemiology 2006; 27(3): 136–142.
11. Stroka-Wetsch M. The effect of informal caregiving on medication: evidence from administrative data. Eur J Health Econ 2022; 23: 1535–1545.
12. García-Mayor J, Moreno-Llamas A, De la Cruz-Sánchez E. Health-related lifestyle of Spanish informal caregivers: results from two national health surveys. Fam Relat 2022; 1–15.
13. Ransmayr G, Hermann P, Sallinger K, et al. Caregiving and caregiver burden in dementia home care: results from the prospective dementia registry (PRODEM) of the Austrian Alzheimer Society. J Alzheimers Dis 2018; 63(1): 103–114.
14. Fekete C, Tough H, Siegrist J, et al. Health impact of objective burden, subjective burden and positive aspects of caregiving: an observational study among caregivers in Switzerland. BMJ Open 2017; 7(12): e017369.
15. Stockel J, Bom J. Revisiting longer-term health effects of informal caregiving: evidence from the UK. J Econ Ageing 2022; 21: 100343.
16. Riffin C, Van Ness PH, Wolff JL. Multifactorial examination of caregiver burden in a national sample of family and unpaid caregivers. J Am Geriatr Soc 2019; 7(2): 277–283.
17. Park M, Choi S, Lee SJ, et al. The roles of unmet needs and formal support in the caregiving satisfaction and caregiving burden of family caregivers for persons with dementia. Int Psychogeriatr 2018; 30(4): 557–567.
18. Mayo NE, Wood-Dauphinee S, Cote R, et al. There’s no place like home: an evaluation of early supported discharge for stroke. Stroke 2000; 31(1): 1016–
1023.
19. Kong YL, Anis-Syakira J, Jawahir S, et al. Factors associated with informal caregiving and its effects on health, work and social activities of adult informal caregivers in Malaysia: findings from the National Health and Morbidity Survey 2019. BMC Public Health 2021; 1033(21): 1–13.
20. Juntunen K, Salminen AL, Törmäkangas T, et al. Perceived burden among spouse, adult child and parent caregivers. J Adv Nurs 2018; 74(10): 2340–2350.
21. Roth DL, Fredman L, Haley WE. Informal caregiving and its impact on health: a reappraisal from population-based studies. Gerontologist 2015; 55(2): 309–319.
22. Lindt N, van Berkel J, Mulder BC. Determinants of overburdening among informal carers: a systematic review. BMC Geriatr 2020; 20(1): 304–316.
23. Mollica MA, Smith AW, Kent EE. Caregiving tasks and unmet supportive care needs of family caregivers: a U.S. population-based study. Patient Educ Couns 2020; 103(3): 626–634.
24. Beach SR, Schulz R. Family care-
giver factors associated with unmet needs for care of older adults. J Am Geriatr Soc 2017; 65(3): 560–566.
25. Abrahamsen SA, Grøtting MW. Formal care of the elderly and health outcomes among adult daughters. Health Econ 2023; 32(2): 436–461.
26. Di Gessa G, Xue B, Lacey R, et al. Young adult carers in the UK: new evidence from the UK Household Longitudinal Study. Int J Environ Res Public Health 2022; 19(21): 14076.
27. Bastawrous M. Caregiver burden: a critical discussion. Int J Nurs Stud 2012; 50(3): 431–441.
28. Paulík K. Psychologie lidské odolnosti. Praha: Grada Publishing 2020.
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