Family system and caretakers‘ burdens with Alzheimer’s disease.

Czech version

Authors: E. Jarolímová; E. Broučková; I. Holmerová
Published in: Geriatrie a Gerontologie 2016, 5, č. 3: 128-131
Category: Original Article/Study

Overview

Because of the restraint of one’s ability of leading an independent life, Alzheimer’s dementia has a radical impact on those suffering from it and those around them. This dependency on others affects not only the caring-providing relatives but it also affects other family members. In the qualitative study we observed the effects of care burden on the family system, how it changes relationships in the family and how the care burden and duties are divided among the family members. Based on extensive semi-structured interviews we provide a description of relationships and conflicts in the family system appearing over the course of looking after a person with dementia. We’ve approached the topic from the family carer’s point of view, our respondents have had a direct, actual and long-term experience with the care at home. The main topics of the family care seemed to be: a voluntary autonomy, a shared care and sibling relationships. Family carers need supportive programs and psychosocial intervention including the long-term monitoring in order to support the family care about persons with dementia for as long time as possible.

KEYWORDS:
dementia – caregiver burden – models of family care – psychosocial intervention

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