Palliative care for children with congenital developmental defects since the prenatal period: comfort in the first place

Czech version

Authors: HM. Dvořáková
Authors‘ workplace: Novorozenecké oddělení s JIP, Gynekologicko-porodnická klinika 2. LF UK a FN Motol, Praha Tým dětské podpůrné péče FN Motol, Praha
Published in: Čes-slov Neonat 2024; 30 (1): 53-58.
Category: Reviews

Overview

Palliative care in the neonatal period represents a specific component of pediatric palliative care. In accordance with internationally accepted standards and the World Health Organization's recommendations, it should be provided from the diagnosis onwards, even during ongoing treatment with a curative intent. In the Czech Republic, pediatric palliative medicine, as well as perinatal palliative care, has undergone rapid development in recent years, with an increasing number of facilities offering specialized palliative care within hospital settings through consultative teams. This article introduces the basic principles of perinatal palliative care, reflects on the specifics of palliative care for severely ill newborns, and the current situation in the Czech Republic. Finally, experiences from providing perinatal palliative care at the Motol University Hospital in Prague are presented.

Keywords:

neonate – advance care planning – perinatal palliative care – life-limiting condition – life-threatening condition

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Konflikt zájmu: žádný. Došlo do redakce: 26. 2. 2024

Adresa pro korespondenci:
MUDr. Hana Marie Dvořáková, PhD.
Novorozenecké oddělení
Gynekologicko-porodnická klinika 2. LF UK a FN Motol
V Úvalu 84
150 06 Praha 5
e-mail: hana.dvorakova@fnmotol.cz