QUALITY OF LIFE OF ADULTS WHO STUTTER – IMPLICATIONS FOR CLINICAL PRACTICE

Czech version

Authors: Cibisz Klaudia; Lic. ¹; hab. Sierska Katarzyna W Dr ^2,3
Authors‘ workplace: Studentka dwuletnich studiów magisterskich uzupełniających (pedagogika z logopedią), Uniwersytet Kazimierza Wielkiego w Bydgoszczy, Polska ¹; Instytut Językoznawstwa, Wydział Humanistyczny, Uniwersytet Śląski w Katowicach, pl. Sejmu Śląskiego , 40-032 Katowice, Polska, + 48 604 776 149 ²; Centrum Logopedyczne w Katowicach ul. Koszykowa 11A/1, 40-781 Katowice, Polska ³
Published in: Listy klinické logopedie 2019; 3(2): 80-89
Category: Miscellaneous

Overview

The article discusses the issue of quality of life in persistent stuttering. In order to illustrate this phenomenon, outcomes of a case study of 10 adult people who stutter were reported. The aim of this study was to recognize how stuttering can affect the quality of life of adults who struggle with the disorder. Results from the WHOQOL-BREF and OASES questionnaires were presented. In addition, selected categorized statements of the study participants on their perception of the quality of life with regards to stuttering gained during interviews were also cited. At the end of the article practical implications for speech therapy practice in stuttering aiming to improve the quality of life of adult people who stutter were summarized and presented.

Keywords:

quality of life (QoL) – case study – stuttering/stammering – adult – clinical practice

Sources

ASHA, (2007). Scope of practice in speech-language pathology ad hoc committee on the scope of practice in speech-language pathology. Online: http://www.asha.org/uploadedFiles/SP201600343.pdf
BANASZKIEWICZ, A. Studium przypadku (case study) jako metoda badań logopedycznych. W: (red.) S. Milewski, K. Kaczorowska-Bray, Metodologia badań logopedycznych z perspektywy teorii i praktyki, Gdańsk: Harmonia Universalis, 2015, s. 364–380.
BLANCHET, P., BOROŃ, A., CHMIELEWSKI, G., EVERARD, R., HAASE, T., GŁADOSZ, Z., JANKOWSKA-SZAFARSKA, L., RAVID, B., ST. LOUIS, K. O., WĘSIERSKA, K. Sukces w terapii jąkania – czym jest i jak go osiągnąć – opinie „podwójnych” ekspertów. W: K. Węsierska, M. Witkowski (red.), Zaburzenia płynności mowy – teoria i praktyka. T. 2, Katowice: Wydawnictwo Uniwersytetu Śląskiego, 2019, s. 13–31.
BLOODSTEIN, O., BERNSTEIN RATNER, N. A handbook on stuttering (6th ed.). Clifton Park, NY: Thomson/Delmar Learning, 2008.
BOTTERILL, W. Developing the therapeutic relationship: From ‘expert’ professional to ‘expert’ person who stutters. Journal of Fluency Disorders, 2011, nr 36(3), s. 158–173.
COLEMAN, C., YARUSS, J. S. A comprehensive view of stuttering: Implications for assessment and treatment. SIG 16 Perspectives on School-Based Issues, 2014, nr 15(2), s. 75–80.
CRAIG, A. The association between quality of life and stuttering. Journal of Fluency Disorders, 2010, nr 35(3), s. 159–160.
CRAIG, A., BLUMGART, E., TRAN, Y. The impact of stuttering on the quality of life of adults who stutter. Journal of Fluency Disorders, 2009, nr 34(2), s. 61–71.
FRANIC, D. M., BOTHE, A. K. Psychometric evaluation of condition-specific instruments used to assess health-related quality of life, attitudes, and related constructs in stuttering. American Journal of Speech-Language Pathology, 2008, nr 17(1), s. 60–80.
ICF. Międzynarodowa Klasyfikacja Funkcjonowania Niepełnosprawności i Zdrowia. Warszawa: Centrum Systemów Informacyjnych Ochrony Zdrowia, 2009.
KLOMPAS, M., ROSS, E. Life experiences of people who stutter, and the perceived impact of stuttering on quality of life: Personal accounts of South African individuals. Journal of Fluency Disorders, 2004, nr 29(4), s. 275–305.
LANGEVIN, M., PRASAD, N. N. A stuttering education and bullying awareness and prevention resource: A feasibility study. Language, Speech, and Hearing Services in Schools, 2012, 43(3), s. 344–358.
LEAHY, M. M., O’DWYER, M., RYAN, F. Witnessing stories: Definitional ceremonies in narrative therapy with adults who stutter. Journal of Fluency Disorders, 2012, nr 37(4), s. 234–241.
PATRICK, D., ERICKSON, P. Health status and health policy: Quality of life in health care evaluation and resource allocation. New York: Oxford University Press, 1993.
PLEXICO, L.W., MANNING, W. H., LEVITT, H. Coping responses by adults who stutter: Part I. Protecting the self and others. Journal of Fluency Disorders, 2009a, nr 34(2), s. 87–107.
PLEXICO, L. W., MANNING, W. H., LEVITT, H. Coping responses by adults who stutter: Part II. Approaching the problem and achieving agency. Journal of Fluency Disorders, 2009a, nr 34(2), s. 108–126.
TETNOWSKI J. Foreword. W: (eds.) B. J. Amster, E. R. Klein. More than fluency. The social, emotional, and cognitive dimensions of stuttering (p. vii-xi). San Diego: Plural Publishing, 2018.
The WHOQOL Group, The World Health Organization quality of life assessment (WHOQOL): Development and general psychometric properties. Social Science and Medicine, 1998a, nr 46(12), s. 1569–1585.
The WHOQOL Group. WHOQOL User Manual. Geneva: World Health Organisation, 1998b.
VANRYCKEGHEM, M. Wielowymiarowa, oparta na dowodach diagnoza prowadząca do wielopłaszczyznowej terapii jąkania. W: (red.) K. Węsierska, K. Gaweł, Zaburzenia płynności mowy, Gdańsk: Harmonia Universalis, 2018, s. 30–43.
WĘSIERSKA, K. Zastosowanie modelu ICF w diagnozowaniu jąkania. Poster zaprezentowany podczas Międzynarodowej Konferencji Logopedycznej „Zaburzenia płynności mowy – teoria i praktyka”, Katowice, 2014, wrzesień. Online: www.konferencja-zpm.us.edu.pl
WHO, International Classification of Functioning, Disability and Health (ICF). Geneva: World Health Organisation, 2001.
WILMOWSKA-PIETRUSZYŃSKA, A., BILSKI, D. Międzynarodowa Klasyfikacja Funkcjonowania, Niepełnosprawności i Zdrowia. Niepełnosprawność. Zagadnienia, problemy, rozwiązania, 2013, nr 2(7), s. 5–20.
WOŁOWICKA, L., JARACZ, K. Polska wersja WHOQOL – WHOQOL 100 i WHOQOL BREF. W: (red.) L. Wołowicka, Jakość życia w naukach medycznych, Poznań: Wydawnictwo Uczelniane Akademii Medycznej w Poznaniu, 2001, s. 235–295.
YAIRI, E., SEERY, C. Stuttering: Foundations and Clinical Applications. Upper Saddle River, NJ: Pearson Education, 2015.
YARUSS, J. S. Application of the ICF in fluency disorders. Seminars in Speech and Language, 2007, nr 28(4), s. 312–322.
YARUSS, J. S. Assessing quality of life in stuttering treatments outcome research. Journal of Fluency Disorders, 2010, nr 35(3), s. 190–202.
YARUSS, J. S., COLEMAN, C. E., QUESAL, R. W. Stuttering in school-age children: A comprehensive approach to treatment. Language, Speech, and Hearing Services in Schools, 2012, nr 43(4), s. 536–548.
YARUSS, J. S., QUESAL, R.W. Stuttering and the International Classification of Functioning, Disability and Health (ICF): An update. Journal of Communication Disorders, 2004, nr 37(1), s. 35–52.
YARUSS, J. S., QUESAL, R. W. Overall Assessment of the Speaker’s Experience of Stuttering (OASES): Documenting multiple outcomes in stuttering treatment. Journal of Fluency Disorders, 2006, nr 31(2), s. 90–115.
YARUSS, J. S., QUESAL, R. W. Overall Assessment of the Speaker’s Experience of Stuttering (OASES). Bloomington, MN: Pearson Assessments, 2010.