Results of the pilot study: Informal care for dementia patients
Authors:
I. Holmerová; J. Hort; R. Rusina; M. Šteffl
Published in:
Geriatrie a Gerontologie 2015, 4, č. 3: 117-124
Category:
Original Article/Study
Overview
The authors present first results of a pilot study of 119 dyads of patients with dementia and their family caregivers using the Resource Utilization in Dementia, fourth version questionnaire (RUD 4.0). The study shows that family carers in the Czech Republic use relatively rarely formal services for persons with dementia. They usually ensure most of the care provided. The number of carers per one person with dementia is on average 1.6 which is lower number than in other countries. Combination of these factors may threaten caregivers in the Czech Republic with isolation more than in other countries. Further data analysis will be necessary to provide more information about costs of care. It is also recommended to revise the terminology of the Czech version of the RUD 4.0 questionnaire, especially in the section on formal services to better target actual services provided in the Czech Republic.
Keywords:
dementia – Alzheimer´s disease – informal carers – family carers
Sources
1. Mátl O, Holmerová I, Mátlová M. Zpráva o stavu demence 2014. Praha: Česká alzheimerovská společnost, 2014.
2. AE. Alzheimer Europe 2013 yearbook with a focus on national policies relating to the care and support of people with dementia and their carers, as well as the prevalence of dementia including the Alzheimer Europe Annual Report 2012. Luxembourg: Alzheimer Europe, 2013.
3. Rusina R, Matej R. Neurodegenerativní onemocnění. Praha: Mladá fronta, 2014.
4. Hort J, Rusina R. Paměť a její poruchy: paměť z hlediska neurovědního a klinického. Praha: Maxdorf, 2007.
5. Prince M, Bryce R, Albanese E, et al. The global prevalence of dementia: A systematic review and metaanalysis. Alzheimer’s & Dementia, 2013; 9: 63–75.
6. Vyhnalek M, Bartos A, Dostál V, et al. Diagnostikujeme a léčíme demence správně a včas. Výsledky průzkumu ve světle nových doporučení. Neurol prax, 2011; 12(5): 342–346.
7. Sheardova K, Hort J, Rusina R, et al. Doporučené postupy pro léčbu Alzheimerovy nemoci a dalších onemocnění spojených s demencí. Cesk Slov Neurol N, 2007; 70/103(5): 589–594.
8. Holmerová I, Jarolimová E, Suchá J. Péče o pacienty s kognitivní poruchou. Praha: Gerontologické centrum, 2007.
9. Holmerová I, Jarolimová E, Suchá J. Péče o pacienty s kognitivní poruchou 2. Česká alzheimerovská společnost, 2007.
10. Jirák R, Holmerová I, Borzová K, a kol. Demence. Praha: Grada Publishing, 2009.
11. Holmerova I, Balackova N, Baumanova M, a kol. Strategie České alzheimerovské společnosti P–PA–IA. Geriatrie a gerontologie, 2013; 2(3): 158–164.
12. HIS. Think Delirium – Delirium toolkit. Glasgow: Healthcare Improvement Scotland, 2014.
13. Holmerová I, Baumanová M, Jurašková B, a kol. Komplexní přístup v léčbě pacientů s Alzheimerovou nemocí. Remedia, 2014.
14. Wimo A, Winblad B, Joenson L. The worldwide societal costs of dementia: Estimates for 2009. Alzheimer’s & Dementia, 2010; 6: 98–103.
15. AE_Glasgow_Declaration.pdf.
16. EC. Long-term care in ageing societies – Challenges and policy options. Brussels: European Commission, 2013; Contract No. 41.
17. Wimo A, Linus J. The worldwide economic impact of dementia. Alzheimer’s & Dementia, 2013; 9: 1–11.
18. Desplanques A. ALCOVE final report. Haute Autorite de Sante, 2013.
19. Kurz A. Psychosocial interventions in dementia. Der Nervenarzt, 2013; 84(1): 93–103; quiz 4–5.
20. Vaňková H. Prevalence kognitivních poruch v pobytových zařízeních pro seniory. Geriatrie a gerontologie, 2013; 2(3): 111–114.
21. Hradcová D, Hájková L, Mátlová M, a kol. Quality of care for people with dementia in residential care settings and the “Vážka” Quality Certification System of the Czech Alzheimer Society. European Geriatric Medicine, 2014; 5: 430–434.
22. Comas-Herrera A, Northey S, Wittenberg R, et al. Future costs of dementia-related long-term care: exploring future scenarios. International psychogeriatrics/IPA, 2011; 23(1): 20–30.
23. Wija P. Jaká je kapacita a struktura dlouhodobé péče v ČR. Geriatrie a gerontologie, 2013; 2(3): 122–7.
24. AE. Dementia in Europe – Yearbook 2008 with a focus on social support, socio-economic cost, psycho-social interventions and prevention. Gove D, Georges J, editors. Luxembourg: Alzheimer Europe, 2009.
25. ALCOVE. ALCOVE Synthesis report. Paris: The European Joint Action on Dementia, 2013.
26. Wimo A, Gustavsson A, Jonsson L, et al. Application of Resource Utilization in Dementia (RUD) instrument in a global setting. Alzheimers Dement, 2013; 9(4): 429–435 e17.
27. Holmerová I, Peškeová M. Pečující a jejich podpora. In: Rusina R, Matěj R, editors. Neurodegenerativní onemocnění. Praha: Mladá fronta, 2014: 313–317.
28. Jarolímová E, Gramppová-Janečková K, Holmerová I. Rodinný pečující o seniora s demencí, pečovatelská zátěž a psychosociální intervence. In: Štěpánková H, Höschl, C., Vidovićová, L, editor. Gerontologie – současné otázky z pohledu biomedicíny a společenských věd. Praha: Karolinum, 2014: 103–116.
29. Holmerová I. Dementia as a priority problem of long-term care. Vienna: Symposium and proceedings of the 22nd Alzheimer Europe Congress, 2012.
30. Folstein M, Folstein S, PR M. „Mini-mental state“: A practical method of grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 1975; 12(3): 189–198.
31. Nasreddine ZS, Phillips NA, Bédirian V, et al. The Montreal Cognitive Assessment, MoCA: A Brief Screening Tool For Mild Cognitive Impairment. Journal of the American Geriatrics Society, 2005; 53(4): 695–699.
32. Reban J. Montrealský kognitivní test (MoCA) – přínos k diagnostice demencí. Česká geriatrická revue, 2006; 4(4): 224–229.
Labels
Geriatrics General practitioner for adults Orthopaedic prostheticsArticle was published in
Geriatrics and Gerontology
2015 Issue 3
Most read in this issue
- Results of the pilot study: Informal care for dementia patients
- Effects of Core Instability Strength Training with Swiss Ball on Postural Stability in Elderly Women
- Social robots in the era of demographic ageing (and gnomographic uncertainty
- The Best Practice Statement is a key objective of the Erasmus+ Dementia Palliare project