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Parkinson’s disease and its impact on dignity of patient: case study using interpretative phenomenological analysis


Authors: M. Tomagová;  J. Němcová;  I. Bóriková
Authors‘ workplace: Vedúca ústavu: prof. Mgr. Katarína Žiaková, PhD. ;  Jesseniova lekárska fakulta v Martine ;  Ústav ošetrovateľstva ;  Univerzita Komenského v Bratislave
Published in: Prakt. Lék. 2020; 100(3): 149-154
Category: Case Report

Overview

Aim: The aim of the qualitative case study is to describe the impact of Parkinson’s disease on the patient’s dignity.

Participant and methods: 65 years old patient, data collection conducted by semi-structured in-depth interview. Interpretative phenomenological analysis using Atlas.ti 8.0 software was used for qualitative analysis.

Results: We identified five themes representing the patient’s life experience in the context of her dignity: Acceptance of disease vs disease as a curse; Deep brain stimulation – joy vs disappointment; Physical limitations vs the need to remain active; Family – supporting vs hyper protective attitude; Health care – „I am not anyone“. The patient’s dignity was influenced mainly by the gradual reduction of autonomy due to the symptomatology of the disease and also by the hyper protective attitude of the family. She also had the experience of disrespecting her personality and autonomy in providing healthcare, which had an impact on her dignity.

Conclusion: Our results indicate the individual life experience of a patient with Parkinson’s disease and an analysis of this experience suggests that the disease affects the survival of dignity. Understanding the individual life experience of patients with chronic, progressive disease will help healthcare professionals respect individual needs, thus promoting and maintaining dignity.

Keywords:

Parkinson’s disease – dignity – qualitative case study – interpretative phenomenological analysis


Sources

1. Benetin J, Valkovič P. Parkinsonova choroba. Bratislava: HERBA 2009.

2. Bramley N, Eatough V. The experience of living with Parkinson’s disease: an interpretative phenomenological analysis case study. Psychol Health 2005; 20(2): 223–235.

3. Caap-Ahlgren M, Lannerheim L, Dehlin O. Older Swedish women’s experiences of living with symptoms related to Parkinson’s disease. J Adv Nurs 2002; 39(1): 87–95.

4. Čáp J, Žiaková K, Gurková E, a kol. Osobná dôstojnosť pacientky so sklerózou multiplex: interpretatívno fenomenologická analýza. Prakt. Lék. 2019; 99(1): 21–27.

5. Gibson G, Kierans C. Ageing, masculinity and Parkinson’s disease: embodied perspectives. Sociol Health Illn 2017; 39(4): 532–546.

6. Haahr A, Brincks J, Sørensen D. Coping with Parkinson’s disease in everyday life: a systematic review protocol. JBI Database System Rev Implement Rep 2017; 15(5): 1288–1297.

7. Haahr A, Kirkevold M, Hall EO, et al. Living with advanced Parkinson’s disease: a constant struggle with unpredictability. J Adv Nurs 2011; 67(2): 408–417.

8. Hellqvist C, Dizdar N, Hagell P, et al. Improving self-management for persons with Parkinson’s disease through education focusing on management of daily life: Patients’ and relatives’ experience of the Swedish National Parkinson School. J Clin Nurs 2018; 27(19–20): 3719–3728.

9. Hammarlund CS, Westergren A, Ǻstrӧm I, et al. The impact of living with Parkinson’s disease: balancing within a web of needs and demands. Parkinsons Dis 2018; ID 459865: 1–8.

10. Ishii M, Okuyama K. Characteristics associated with freezing of gait in actual daily living in Parkinson’s disease. J Phys Ther Sci 2017; 29: 2151–2156.

11. Kalia LV, Lang AE. Parkinson’s disease. Lancet 2015; 386(9996): 896–912.

12. Kozáková R., Bužgová R., Zeleníková R., Sikorová L. Přehled dotazníků a škál hodnotících motorické příznaky pacientů s Parkinsonovou nemocí. Prakt. Lék. 2018; 98(3): 116–120.

13. Kurčová S, Menšíková K, Kaiserová M, a kol. Pre-motorické a non-motorické príznaky Parkinsonovej choroby – taxonómia, klinická manifestácia a neuropatologické koreláty. Cesk Slov Neurol N 2016; 79/112(3): 255–270.

14. Lin, YP, Watson R, Tsai YF. Dignity in care in the clinical setting: A narrative review. Nurs Ethics 2013; 20(2): 168–177.

15. Mathers J, Rick C, Jenkinson C, et al. Patients’experiences of deep brain stimulation for Parkinson’s disease: a qualitative systematic review and synthesis. BMJ Open 2016; 6: e011525.

16. Montel SR, Bungener C. Coping and quality of life of patients with Parkinson disease who have undergone deep brain stimulation of the subthalamic nucleus. Surg Neurol 2009; 72(2): 105–110.

17. Nazzal MS, Khalil H. Living with Parkinson’s disease: a Jordanian perspective. Scand J Occup Ther 2016; 24(1): 74–82.

18. Pietkiewicz I, Smith JA. A practical guide to using Interpretative Phenomenological Analysis inqualitative research psychology. CPPJ 2014; 20(1): 7–14.

19. Redmond L, Suddick K. The lived experience of freezing in people with Parkinson’s: an interpretive phenomenological approach. Int J Ther Rehabil 2012; 19(3): 169–177.

20. Rees RN, Acharya AP, Schrag A, et al. An early diagnosis is not the same as a timely diagnosis of Parkinson’s disease. F1000Res 2018; 7(F1000 Faculty Rev): 1106.

21. Řiháček T, Čermák I, Hytych R, a kol. Kvalitativní analýza textů: čtyři přístupy. Brno: Masarykova univerzita 2013.

22. Sheehy TL, McDonough MH, Zauber SE. Social comparisons, social support, and self-perceptions in group exercise for people with Parkinson’s Disease. J Appl Sport Psychol 2016; 29(3): 285–303.

23. Smith JA, Flowers P, Larkin M. Interpretative phenomenological analysis. Theory, method and research. London: Sage 2012.

24. Smith LJ, Shaw RL. Learning to live with Parkinson’s disease in the family unit: an interpretative phenomenological analysis of well-being. Med Health Care Philos 2017; 20(1): 13–21.

25. Soleimani MA, Negarandeh R, Bastani F, et al. Disrupted social connectedness in people with Parkinson’s disease. Br J Community Nurs 2014; 19(3): 136–141.

26. Soundy A, Stubbs B, Roskel C. The experience of Parkinson’s Disease: A systematic review and meta-ethnography. Scientific World Journal 2014; 2014: 613592.

27. Stanley-Hermanns M, Engebretson J. Sailing the stormy seas: the illness experience of persons with Parkinson disease. Qual Rep 2010; 15(2): 340–369.

28. Tranvåg O, Synnes O, McSherry. (eds.) Stories of dignity within healthcare. Research, narratives and theories. Keswick, Cumbria: M&K Publishing 2016.

29. Valcarenghi R, Alvarez AM, Santos SS, et al. The daily lives of people with Parkinson’s disease. Rev Bras Enferm 2018; 71(2): 272–279.

30. Van Gennip IE, Pasman HRW, Oosterveld-Vlug MG, et al. The development of a model of dignity in illness based on qualitative interviews with seriously ill patients. Int J of Nurs Stud 2013; 50: 1080–1089.

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